Family Practice Advance Access originally published online on June 23, 2005
Family Practice 2005 22(4):358-360; doi:10.1093/fampra/cmi053
© The Author (2005). Published by Oxford University Press. All rights reserved. For Permissions, please email: journals.permissions@oupjournals.org
Editorial |
Development of a research registry for primary care community-based research
University of Pittsburgh, School of Medicine, Center for Primary Care Community-Based Research, Department of Family Medicine and Clinical Epidemiology
Correspondence to Janine E Janosky, University of Pittsburgh School of Medicine, Department of Family Medicine and Clinical Epidemiology, 3518 Fifth Avenue, Pittsburgh, PA 15261, USA; Email: jej@pitt.edu
Received 7 March 2005; Accepted 21 April 2005.
Janosky JE, Laird SB, Robinson JD and South-Paul JE. Development of a research registry for primary care community-based research. Family Practice 2005; 22: 358360.
| The first 150 words of the full text of this article appear below. |
A research registry can be of invaluable assistance to physicians and researchers by providing an available panel of patient information that could assist in understanding the patients they are serving, utilization of health care services, and the design and implementation of research studies to improve patient care. We have designed, implemented, and managed such a research registry for our Center for Primary Care Community-Based Research.
A registry has been defined as a file of documents containing uniform information about individual persons, collected in a systematic and comprehensive way, in order to serve a predetermined purpose.1 Registry data systems are powerful tools used by researchers in a variety of health-related fields. The application of these systems in epidemiologic, clinical, and health services research are many. They are utilized to estimate disease prevalence and incidence, to estimate health care resource utilization and clinical outcomes, and to track changes in these parameters over
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